Manly Wharf Bridge to Beach supporting The Fragile X Association of Australia
Proposed date Sunday 25th February 2018
The Manly Wharf Bridge to Beach is one of Australia’s largest open water paddling events and is regarded as one of the most spectacular in the world. Proudly sponsored by Manly Wharf. Participants marshal at Blues Point Reserve for a spectacular sunrise over Sydney Harbour before lining up directly underneath the Sydney Harbour Bridge where the start line is situated. They then paddle past the Sydney Opera House and hug the northern shores of Sydney Harbour taking in sights such as Taronga Zoo, Bradley’sHead, Clifton Gardens, North Harbour Reserve and both South and North Head on their way to the beautiful Manly Wharf where the finish is.
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Fragile X is a genetic condition affecting as many as 90,000 Australians.
Fragile X can impact whole families. Fragile X syndrome is the leading genetic cause of intellectual disability, and the most common known cause of autism. Fragile X can also result in a Parkinson’s-like symptoms, and in fertility problems for some women.
While Fragile X conditions have no cure and require ongoing treatment and care, early diagnosis and treatment by health, medical and educational professionals are critical for achieving the best possible outcomes.
Fragile X Association of Australia – in Manly!
We’re a small national charity, based across the road from the Bridge to Beach finish line!
We’re 100% reliant on donations and fundraising in order to do what we can for Fragile X families across Australia. We value all support, small and large!
Our mission – to work towards the best possible lives for Fragile X families throughout Australia.
To achieve this we provide free specialist counselling, educational workshops, access to assessment clinics, and current information resources. We promote community awareness of Fragile X. We lobby for support. We connect families.
We’re proud to be Oceanpaddler’s charity partner for the iconic Bridge to Beach. And we’re proud to be supported by our local paddling community and by local business.
Your donations and fundraising will resource our Family Support Service. This is a trained counsellor who provides support and information for families: on care for people with Fragile X, guidance on the NDIS, and referrals to health professionals expert in Fragile X.
Fragile X: Impact on whole families
Meet Rosemarie McRae. A former helicopter pilot, she’s flown all over the world, mustered via chopper in the outback, and flown out to oil rigs with supplies & for sea rescues. But now in her 60’s Rosemarie has a Fragile X condition, an incurable tremor and cognitive issues. Her daughters have inherited Fragile X from her.
Watch a 90 second clip about Fragile X in the McRae family on Channel 7 News: http://yhoo.it/29FbRPD
Fragile X Ambassador for Bridge to Beach
Luke Ratcliff married into a Fragile X family and competitor in Oceanpaddler’s Bridge to Beach.
SUPing is Luke’s latest water sport. He’s also a sailor (18 footers, 11-time Sydney to Hobart Race competitor including overall winner in 2003) and kiteboarder.
Luke took up stand-up paddling 3 years ago as a new challenge and trains at least twice a week on Pittwater. He also competes at Narrabeen Lake on Sunday mornings and in races around Sydney.
Luke is delighted to support Oceanpaddler’s race on account of his close association with Fragile X. Luke married into a family where Fragile X can be traced back five generations, but was not diagnosed till 1979. He’s committed to improving the diagnosis and care of those with Fragile X.
Luke loves the social and competitive side of the paddling. And it Luke’s suggestion that Oceanpaddler hook up with Fragile X Association, as a way of raising awareness of the syndrome. Thanks Luke!