“Many thanks to the paddlers, Oceanpaddler and Shaw and Partners Financial Services for supporting Fragile X Association of Australia through Bridge to Beach fundraising for over 10 years. An awesome commitment!
The funds raised through Bridge to Beach each year help fund our FX Family Support Counsellor to provide unique support to people who are navigating life with Fragile X. Specialist counselling for individuals living with Fragile X, and their carers and family members, can make a real difference in quality of life through providing information and referrals, connection with peers, and in addressing mental health and daily living challenges.
The FX Counsellor is an essential support for hundreds of families across Australia who are living with Fragile X.
FRAGILE X is a family of conditions, caused by an inherited genetic alteration to the Fragile X gene. These conditions are all complex and lifelong.
Fragile X syndrome causes developmental disability and difficulties with learning, behaviours and daily living. Many people living with Fragile X also have ADHD and autism spectrum disorder and are likely to experience medical problems such as epilepsy. Around 1 in 3600 males/4000-6000 females are living with Fragile X syndrome.
People who are carriers for Fragile X can experience health, reproductive and neuropsychiatric issues – for example, early menopause for women or neurodegenerative condition with Parkinson’s type symptoms for men in later life. In the general population around in 200 females/800 males are carriers for Fragile X.
YOUR DONATION made in the Bridge to Beach online registration helps to make sure the Fragile X specialist counsellor service is available to make contact with Fragile X families on the Northern Beaches and right across Australia – by Zoom, phone, email, message or face to face.
FRAGILE X ASSOCIATION OF AUSTRALIA – We’re a local charity based on the Northern Beaches, and we’ve been serving the Fragile X community across Australia since 1989.
Learn more about Fragile X here: www.fragilex.org.au
Many thanks for your support!
