Manly Wharf Bridge to Beach

Manly Wharf Bridge to Beach supporting The Fragile X Association of Australia

Sunday 24th February 2019

The Bridge to Beach is proudly sponsored by Manly Wharf and supports The Fragile X Association of Australia.

The Manly Wharf Bridge to Beach is the final event of the Shaw and Partners Australian Ocean Racing Series.

2018 Manly Wharf Bridge to Beach Video

The Manly Wharf Bridge to Beach is one of Australia’s largest open water paddling events and is regarded as one of the most spectacular in the world. Proudly sponsored by Manly Wharf. Participants marshal at Blues Point Reserve for a spectacular sunrise over Sydney Harbour before lining up directly underneath the Sydney Harbour Bridge where the start line is situated. They then paddle past the Sydney Opera House and hug the northern shores of Sydney Harbour taking in sights such as Taronga Zoo, Bradley’sHead, Clifton Gardens, North Harbour Reserve and both South and North Head on their way to the beautiful Manly Wharf where the finish is.

Click here for all event information.

  


 


The Fragile X Association of Australia

www.fragilex.org.au

Fragile X is a genetic condition affecting as many as 90,000 Australians. 

Fragile X can impact whole families. Fragile X syndrome is the leading genetic cause of intellectual disability, and the most common known cause of autism.  Fragile X can also result in a Parkinson’s-like symptoms, and in fertility problems for some women.

While Fragile X conditions have no cure and require ongoing treatment and care, early diagnosis and treatment by health, medical and educational professionals are critical for achieving the best possible outcomes.

Fragile X Association of Australia – in Manly!

We’re a small national charity, based across the road from the Bridge to Beach finish line!    

We’re 100% reliant on donations and fundraising in order to do what we can for Fragile X families across Australia. We value all support, small and large!

Our mission – to work towards the best possible lives for Fragile X families throughout Australia.
To achieve this we provide free specialist counselling, educational workshops, access to assessment clinics, and current information resources.  We promote community awareness of Fragile X. We lobby for support.  We connect families.

We’re proud to be Oceanpaddler’s charity partner for the iconic Bridge to Beach.   And we’re proud to be supported by our local paddling community and by local business.

Your donations and fundraising will resource our Family Support Service. This is a trained counsellor who provides support and information for families: on care for people with Fragile X, guidance on the NDIS, and referrals to health professionals expert in Fragile X.


Fragile X: Impact on whole families  

Meet Rosemarie McRae. A former helicopter pilot, she’s flown all over the world, mustered via chopper in the outback, and flown out to oil rigs with supplies & for sea rescues. But now in her 60’s Rosemarie has a Fragile X condition, an incurable tremor and cognitive issues. Her daughters have inherited Fragile X from her.

Watch a 90 second clip about Fragile X in the McRae family on Channel 7 News: http://yhoo.it/29FbRPD


Fragile X Ambassador for Bridge to Beach

Luke RatcliffLuke Ratcliff married into a Fragile X family and competitor in Oceanpaddler’s Bridge to Beach.

SUPing is Luke’s latest water sport. He’s also a sailor (18 footers, 11-time Sydney to Hobart Race competitor including overall winner in 2003) and kiteboarder.

Luke took up stand-up paddling 3 years ago as a new challenge and trains at least twice a week on Pittwater. He also competes at Narrabeen Lake on Sunday mornings and in races around Sydney.

Luke is delighted to support Oceanpaddler’s race on account of his close association with Fragile X. Luke married into a family where Fragile X can be traced back five generations, but was not diagnosed till 1979.   He’s committed to improving the diagnosis and care of those with Fragile X.

Luke loves the social and competitive side of the paddling. And it Luke’s suggestion that Oceanpaddler hook up with Fragile X Association, as a way of raising awareness of the syndrome. Thanks Luke!


LATEST EVENT NEWS

April 6, 2018

Manly Wharf Bridge To Beach 2018 Video

March 11, 2018

Anytime Fitness & Shaw and Partners AORS 2018 + Point Score

February 25, 2018

RESULTS – Manly Wharf Bridge to Beach 2018

Well done to all competitors in the 2018 Manly Wharf Bridge to Beach.