Fundraise for Fragile X
Fragile X is a genetic condition affecting as many as 90,000 Australians. It can impact whole families. Fragile X syndrome is the leading genetic cause of intellectual disability, and the most common known cause of autism. Fragile X can also result in a Parkinson’s-like symptoms, and in fertility problems for some women.
Fragile X Association is a small Manly-based charity providing support for children and adults affected by Fragile X across Australia. www.fragilex.org.au
Show Your Support & Fundraise or Donate Today!
Paddle the Bridge to Beach and have your friends and family support you for every kilometre you paddle. Your fundraising will resource our Family Support Service. This is a trained counsellor who provides support and information for families: on care for people with Fragile X, guidance on the NDIS, and referrals to health professionals expert in Fragile X.
A My Cause Fundraising Page will be set up prior to the event. Please check back again.
Fragile X: Impact on whole families
Meet Rosemarie McRae. A former helicopter pilot, she’s flown all over the world, mustered via chopper in the outback, and flown out to oil rigs with supplies & for sea rescues. But now in her 60’s Rosemarie has a Fragile X condition, an incurable tremor and cognitive issues. Her daughters have inherited Fragile X from her.
Watch a 90 second clip about Fragile X in the McRae family on Channel 7 News: http://yhoo.it/29FbRPD