Fundraise for Fragile X
Fragile X is a genetic condition affecting as many as 90,000 Australians. It can impact whole families. Fragile X syndrome is the leading genetic cause of intellectual disability, and the most common known cause of autism. Fragile X can also result in a Parkinson’s-like symptoms, and in fertility problems for some women.
Fragile X Association is a small Manly-based charity providing support for children and adults affected by Fragile X across Australia. www.fragilex.org.au
Donations to Fragile X in 2020
For the forth year running, Shaw and Partners Financial Services has generously committed to match, dollar for dollar, donations made to the Manly Wharf Bridge to Beach brought to you by Investec event, raising much needed funding for Fragile X Association of Australia*. If we as a paddling community can raise over $5,000, Shaw and Partners will match this another $5,000. This means that for every $1 that you donate, you are in fact, effectively donating $2 and your donation is tax deductible.
This will help fund the specialist family support service offered to Fragile X families across Australia.
Help us reach our target of $10,000 for Fragile X!
Participants can donate to Fragile X when entering online.
*Donations will be matched to a cap of $5,000
Stuart X | narrated by Cate Blanchett | sponsored by Shaw and Partners.
This 5-minute film is the story of Stuart Iredale and his long journey to a diagnosis of Fragile X. Born in the 1950s when Fragile X was not known, Stuart suffered years of institutionalisation and mistreatment, before finally being diagnosed with Fragile X and being given a new pathway of care and support.
Stuart X was filmed by northern beaches filmmaker Thibault Upton, and is narrated by Academy Award winning Australian actor Cate Blanchett.
Stuart’s family is from the northern beaches and initiated the Bridge to Beach charity sponsorship of Fragile X Association of Australia from 2014.