Fundraising for Fragile X

Fragile X is a genetic condition affecting as many as 90,000 Australians. It can impact whole families. Fragile X syndrome is the leading genetic cause of intellectual disability, and the most common known cause of autism.  Fragile X can also result in a Parkinson’s-like symptoms, and in fertility problems for some women.

Fragile X Association is a small Manly-based charity providing support for children and adults affected by Fragile X across Australia.  www.fragilex.org.au

 

Show your Support & Fundraise or Donate today!

Your fundraising will resource our Family Support Service. This is a trained counsellor who provides support and information for families: on care for people with Fragile X, guidance on the NDIS, and referrals to health professionals expert in Fragile X.

START FUNDRAISING NOW.  

Its easy. Click on START FUNDRAISING NOW. You will be redirected to the MyCause Fundraising page where you can get started or make a donation. Every dollar helps. 

 

Fragile X: Impact on whole families  

Meet Rosemarie McRae. A former helicopter pilot, she’s flown all over the world, mustered via chopper in the outback, and flown out to oil rigs with supplies & for sea rescues.  But now in her 60’s Rosemarie has a Fragile X condition, an incurable tremor and cognitive issues.  Her daughters have inherited Fragile X from her. 

Watch a 90 second clip about Fragile X in the McRae family on Channel 7 News: http://yhoo.it/29FbRPD